"WORKING QUADS" HomePage
第18回RI世界会議のための英文プレゼンテーション
The Presentation for the Rehabilitation International 18th World Congress
介助を必要とする重度障害者(四肢まひ者)の ハイテクを活用した知的生産活動
INTELLECTUAL WORKING OF THE QUADRIPLEGICS MAKING GOOD USE OF TECHNOLOGY WHO NEED ATTENDANT SERVICES IN JAPAN
清家 一雄 / by Kazuo Seike,

English
2000 and Beyond, Rehabilitation International 18th World Congress
Congress Programme




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DATE : WEDNESDAY, 18 SEPTEMBER

SESSION NO & : 87 - WORLD AT WORK

TITLE : INNOVATIONS IN REHABILITATION AND RETURN TO WORK:
WHAT WORKS AND WHAT DOESN'T

CHAIR : JAMES BARNES
MANAGING DIRECTOR, NEW FRONTIERS INTERNATIONAL, WELLINGTON, NEW ZEALAND.

PRESENTATION : HON DOUG KIDD,
MINISTER OF LABOUR, NEW ZEALAND

LEX FRIEDEN
SENIOR VICE-PRESIDENT, THE INSTITUTE FOR REHABILITAYION AND RESEARCH.

RYOSUKE MATSUI
DIRECTOR INTERNATIONAL COOPERATION, JAPAN ASSOCIATION FOR EMPLOYMENT OF DISABLED PERSONS

KAZUO SEIKE
PRESIDENT, RESEARCH ASSOCIATION ON WORK FOR EMPLOYMENT OF DISABLED PERSONS

HARTMUT HAINES
FEDERAL MINISTRY OF LABOR AND SOCIAL AFFAIRS

ROGER BARSON
DISABILITYT POLICY AND PLANNING, DEPT OF HUMAN SERVICES AND HEALTH

JEAN SHERRELL-ALEXANDER
AUSTRALIA

VAUGHAN SAMPSON
CHIEF EXECUTIVE, AUCKLAND EMPLOYERS' ASSAOCIATION

ROSS WILSON
VICE-PRESIDENT, NZ COUNCIL OF TRADE UNIONS

GRANT TWEDDLE
EXECUTIVE OFFICER, ACCIDENT REHABILITATION AND COMPENSATION INSURANCE CORPORATION


INTRODUCTION : HON DOUG KIDD




プレゼンター:清家 一雄
PRESENTER : KAZUO SEIKE



介助を必要とする重度障害者(四肢まひ者)の
ハイテクを活用した知的生産活動
INTELLECTUAL WORKING OF THE QUADRIPLEGICS MAKING GOOD USE OF TECHNOLOGY
WHO NEED ATTENDANT SERVICES IN JAPAN






18th World Congress of Rehabilitation International
Auckland, New Zealand 1996
Kazuo Seike, Mr. Reiji Goto, Mr. Naoki Tamashiro
1996年9月、第18回RI世界会議
オークランド、ニュージーランド
清家一雄、後藤礼治さん、玉城直樹さん


18th World Congress of Rehabilitation International
Auckland, New Zealand 1996
Prime Ministar
1996年9月、第18回RI世界会議
オークランド、ニュージーランド
ニュージーランド首相


18th World Congress of Rehabilitation International
Auckland, New Zealand 1996
1996年9月、第18回RI世界会議
オークランド、ニュージーランド


Auckland, New Zealand
1996年9月、第18回RI世界会議
オークランド、ニュージーランド


Seminar: T. Session No: 87. Wednesday 18 September, 10.30 am - 5.30 pm. ASB Theatre, AC
World At Work - Innovations in Rehabilitation and Return to Work: What Works and What Doesn't
1996年9月、第18回RI世界会議
オークランド、ニュージーランド
セミナー:ワールド・アット・ワーク


1996年9月、第18回RI世界会議
オークランド、ニュージーランド
セミナー:ワールド・アット・ワーク
Seminar: T. Session No: 87. Wednesday 18 September, 10.30 am - 5.30 pm. ASB Theatre, AC
World At Work - Innovations in Rehabilitation and Return to Work: What Works and What Doesn't
Six countries will come together to share experiences in developing legislation and applying models to return injured workers to work. This Seminar aims to provide attendees with information on training and pilot programmes from around the world from which lessons can be learned together.


1996年9月、第18回RI世界会議
オークランド、ニュージーランド
セミナー:ワールド・アット・ワーク
Seminar: T. Session No: 87. Wednesday 18 September, 10.30 am - 5.30 pm. ASB Theatre, AC
World At Work - Innovations in Rehabilitation and Return to Work: What Works and What Doesn't


1996年9月、第18回RI世界会議
オークランド、ニュージーランド
セミナー:ワールド・アット・ワーク
The World at Work
Seminar: T. Session No: 87. Wednesday 18 September, 10.30 am - 5.30 pm. ASB Theatre, AC
World At Work - Innovations in Rehabilitation and Return to Work: What Works and What Doesn't
Six countries will come together to share experiences in developing legislation and applying models to return injured workers to work. This Seminar aims to provide attendees with information on training and pilot programmes from around the world from which lessons can be learned together.

Introduction: Hon Doug Kidd,
Minister of Labour, New Zealand.
(Introduced by Gavin A Robins, Managing Director, ACC).

Co-Chairs:
Celia Fullerton-Smith, Regional Assistant Commissioner, State Services Commission, Auckland, New Zealand.
James Barnes, Managing Director, New Frontiers International, Wellington, New Zealand.


1996年9月、第18回RI世界会議
オークランド、ニュージーランド
セミナー:ワールド・アット・ワーク
レックス・フリーデン
Lex Frieden, Senior Vice-President,
The Institute for Rehabilitation and Research.
Presenters: USA
Overview of the Americans with Disabilities Act


An Employer's Perspective Speaker to be Announced.


1996年9月、第18回RI世界会議
オークランド、ニュージーランド
セミナー:ワールド・アット・ワーク
松井亮輔さん
Ryosuke Matsui, Director International Cooperation, Japan Association for Employment of Disabled Persons
JAPAN An Overview - The Impact of the Quota System


1996年9月、第18回RI世界会議
オークランド、ニュージーランド
セミナー:ワールド・アット・ワーク
清家一雄:重度四肢まひ者の就労問題研究会
Kanzua Seike, President, Research Association on Work of Persons with Severe Disabilities
Disability Management in the Workplace - Workplace Project

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プレゼンター:清家 一雄
PRESENTER : KAZUO SEIKE



介助を必要とする重度障害者(四肢まひ者)の
ハイテクを活用した知的生産活動
INTELLECTUAL WORKING OF THE QUADRIPLEGICS MAKING GOOD USE OF TECHNOLOGY
WHO NEED ATTENDANT SERVICES IN JAPAN



In Japan, quads who need attendant services and cannot drive a car find it difficult
to live with their family, not to mention independent living in communities. They
sometimes have to stay in hospital long after they get well or have to enter nursing
homes. It is also hard for them to live in their own home. They have to depend on
their family, public attendant service programmes being far from sufficient. Few
opportunities for significant and gainful jobs are available to them as compared
with people without disabilities. Public offices employ the disabled on the condition
that they can commute and work for themselves. Problems for quads in finding a
job have not yet been resolved.

Such being the case in Japan, the Research Association on Work of the Persons
with Severe Disabilities (RAW) has produced the journal Working Quads and has
been focusing on the intellectual productive activities of quadriplegics. However,
there have emerged, some, not many, quadriplegics who need attendant services
to really work in Japan. We try to find and contact those "working quads" and
make them known to the society through our journal Working Quads.

The RAW was inaugurated in 1989, and consists of quads and specialists. The
RAW has researched the possibility of working (the intellectual productive
activities) of the persons with quadriplegia who need attendant service
programmes and cannot drive a car. In this research, through fact-finding inquiries
on the productive activities of the quadriplegics due to spinal cord injuries and
other impairments in Japan, America, and Canada, we compare the social
background and consider the possibility of using high tech for the productive
activities of the quads, from the point of view of the individual with severe disability.

The RAW has published the journal Working Quads No.1 -No.10. No.9 is A4-size,
124 pages, color four pages, 1,000 copies. Its special issue is Self-employment
and the persons with severe disabilities. No.10 is A4, 174 pages, 1,000 copies.
Its special issues are The Intellectual Productive Activities of Quads Using the PC
System based on Windows Ver 3.1 and The International Network Activities of Quads.

The Working Quads editorial office has 6 editors and 66 writers.

-399- Editors : Masafumi Ide, Spinal Injuries Center, Department of Rehabilitation
Engineering Research and Development; Fukashi Tsutsumi, Bureau of Sewage of
Fukuoka City; Lo Shihlin, Research Student of Kyushu University ME; Kiyokatsu
Yoshida, Judicial Scrivener; Torahiko Nakashima; Tatsumasa Hosokawa.

Its 66 writers consist of 59 people with severe disability, one paraplegic and six
non-disabled. Of those 59 writers 52 have quadriplegia; four, cerebral palsy; one,
polio sequelae; one muscular dystrophy; and one, infantile rheumatism. Among
the 59 severely disabled who contributed to Working Quads, 28 of them are self-
employed, eleven employed, two students and eighteen unemployed. Twelve
Quad writers receive no pension.

In this presentation, seven cases (Mr TO, Ms IS, Mr TY, Mr KY, Mr HM, Mr FT, and
Ms NS) are introduced from the writers.



ケース・リポート
Case Report


ケース 1
CASE ONE


ケース 1 零細自営
在宅におけるデータ入力とワープロ・ビジネス
Case 1 Mr. T.O., Small-scale self-employment,
the data input and the word processor business in his Home

写真説明
Photograph





ケース 2
CASE TWO


ケース 2 専門自営
在宅における学習塾経営
Case 2 Ms. I.S., Professional self-employment,
Management of a private tutoring shcool in her home.

写真説明
Photograph



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ケース 3
CASE THREE


ケース 3
在宅におけるフリーランス・コンピュータープログラマとシステムエンジニア
Case 3 Mr. T.Y., Professional self-employment;
Free lance computer programmer and system engineer in his home.

写真説明
Photograph





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ケース 4
CASE FOUR


ケース 4
専門自営、事務所における司法書士
Case 4 Mr. K.Y.,
Professional Self-Employment, judicial scrivener in his office
写真説明
Photograph





ケース 5
CASE FIVE


ケース 5
大規模自営
自宅と事務所における賃貸ビル管理
賃貸ビル管理会社社長
Case 5 Mr. H.M., Large-scale self-employment,
management of his building for rent in his home and his office
President of the company to maintain his building for rent

写真説明
Photograph



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ケース 6
CASE SIX


ケース 6
Case 6 Mr. F.T.,
福岡市下水道局職員への復職、雇用
中部下水道処理場
Employment, reinstatement of the Bureau of Sewage of Fukuoka City
Chubu Sewage Treatment Plant

写真説明
Photograph





ケース 7
CASE SEVEN


ケース 7
尼崎市立中学理科教師への復職、雇用
Case 7 Ms. N.S.,
Employment, Return to Employment of Amagasaki City Junior High-school

写真説明 Photograph



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考察
DISCUSSION


Seven personal cses have been introduced through this case report. In terms of
self-employment and return to employment, quads have improved their quality of
working life by thinking, communicating, and efficiently utilizing high-tech and
attendant services within their abilities and assets. They create their own future
from the small scale self-employment (Mr TO, data entry), to the professional self-
employment (Ms IS, management of private tutoring school; Mr TY, system
engineer; Mr KY, judicial scrivener) to the large scale self-employment (Mr HM,
management of his building for rent) There is a lot of self-employment which is not
accompanied by the commuting load. Mr FT and Ms. NS were introduced as
examples of return to the employment work and their former position as
pubic servants. A quad cannot acquire a driving license.

But compared with the U.S.A., very few quads work as professionals or members of
the management in Japan.

The presenter studied abroad with assistance from the Project of Training and
Study of Japanese Disabled Persons in the USA, and the Japanese Society for
Rehabilitation of the Disabled Inc and the Circle of Love Foundation from 1985 to
1986, and researched the Attendant Service Programes and the Independent
Living Movement of people with disabilities at the Centre for Independent Living in
Berkeley and the World Institute on Disability.

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In 1990, we received a Research Grant by the Toyota Foundation for
comparative study of Japan and the USA on participation in the process of the
productive activities of quadriplegics with spinal cord injuries and the new
possibility by efficient utilization of High Tech. In 1991, the presenter researched
and interviewed with C1-2 quad in San Francisco, USA, and attended the conference
"Independent Living-Preparing for the 21st Century".

As for utilizing high tech, Japan does not delay compared with the USA., but very
few people with severe physical disabilities work as professionals. There are
many specialists, members of management, and executive directors of Centres for
Independent Living in the United States. In America many quadriplegics due to
spinal cord injuries participate in the process of the productive activities, in the
background, as well as a various support system using high tech. The social
consensus, as in the Americans with Disabilities Act, not to accept discrimination
against people with disabilities is a significant factor. It is a problem in the future.



むすび
CONCLUSION


Quadriplegics, typically represented by quadriplegia due to spinal cord injury, have
no intellectual disability. It is not constructive that quadriplegics with intellectual
abilities live in nursing home, special nursing home for the aged and the hospital, etc. It is
a problem from the point of the quality of life. It is a doubtful that there is no option
in the above all.

Quads can live independently, which consists of working if there are attendant
services, houses to live in, mobility and education. It is very useful for quads, their
families and society to share the information which can reduce the quantity of
assistance for quads and increase their intellectual productiveness.

For this purpose, the RAW would like to play a central role to form an information
network and build a database which would help to empower the quads who need
attendant services and cannot drive a car to work.

In November 1994, the RAW was awarded a research grant by the Marubeni
Foundation. We are working on a project to form the Network of the Quad Writers
and to construct the database for the purpose of the intellectual productive activities of
people with severe disabilities.

We think the quads who exchange information and personal contact recover more
easily. It is very important to form a database of information. The research

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association on the work of persons with severe disabilities and its journal Working
Quads will continue to build information networks to present useful information.

We wish to express our gratitude deeply to the Japanese Society for Rehabilitation
of the Disabled, the Circle of Love Foundation, the Toyota Foundation and the
Marubeni Foundation, which cooperate in and support the investigational research
and the project of the presenter and RAW.






C2 quadriplegia due to a sport accident,
Mr. Kenji Yoshida
ventrilator user,
in-home living,


C2頚髄損傷者
吉田憲司さん


C1 quadriplegia due to an ccident,
Mr. Masahiro Ueda
ventrilator user,
cannot eat, drink,
in-home living,


C1頚髄損傷者
上田政博さん
死亡




脊髄損傷ユニット
South Auckland Health
Otara Spinal Unit.


脊髄損傷ユニット
South Auckland Health
Otara Spinal Unit.


Gavin A Robins, Managing Director, ACC.


レックス・フリーデン
ACC's Dinner
Lex Frieden


レックス・フリーデン
ACC's Dinner
Lex Frieden


ACC's Dinner
Mrs. Jean Sherrell-Alexander
Program Manager, Special Projectsa,
ACCIDENT REHABILITATION & COMPENSATION INSURANCE CORPORATION
HEAD OFFICE, SHAMROCK HOUSE, 81-83 MOLESWORTH STREET
P.O.BOX 242 WELLINGTON,
NEW ZEALAND


レックス・フリーデン
ACC's Dinner
Lex Frieden


丹羽勇さん
Banuqet in Aotea Centre
Mr. Sam Niwa, Japan
Developments in Creating an Asia/Pacific Network of Workshops Employing Persons with Disabilities
Japan Planning for Vocational Success.


ウェイン・テランギさん
レックス・フリーデン
Banuqet in Aotea Centre
Wayne Wiri W. Terangi
Lex Frieden


ウェイン・テランギ
あご操作電動車いす
世界身体障害芸術家協会
Wayne Wiri W. Terangi
New Zealand
chin conrol motor chair
Mouth and Foot Painting Artists Association


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    清家一雄、代表者、重度四肢まひ者の就労問題研究会
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